Blood cancers such as leukemia, Hodgkin lymphoma, non-Hodgkin lymphoma, myeloma and myelodysplastic syndromes are cancers that originate in the bone marrow or lymphatic tissues. The following websites contain a selection of helpful resources to information on cancers of the blood.
Shands MDS: 352.265.0111 ext. 29452 ufhealth.org/myelodysplastic-syndromes-mds
The Shands at UF MDS Clinic was recently designated as a Center of Excellence in research, diagnosis, and treatment of MDS by the Myelodysplastic Syndromes Foundation. To find more information please visit the Shands website above for clinic hours and treatment information.
Blood & Marrow Transplant Information Network: 1.888.597.7674, www.bmtinfonet.org
This information network is dedicated exclusively to serving the needs of the transplant community. Here you will find resource directories, information to transplant centers, newsletters, and more on blood and marrow transplant.
International Myeloma Foundation: 1.800.452.2873, www.myeloma.org
This website offers a variety of resources to help patients and families find information on myeloma, understand treatment options, and much more.
Leukemia & Lymphoma Society: 1.800.955.4572, www.lls.org
The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services. This website offer patients services, disease information, professional help with information specialist, and much more!
Max Foundation: 1.888.462.9368, www.themaxfoundation.org
The Max Foundation is dedicated to improving the lives and survival rates of patients with blood cancer and rare cancers worldwide. Max Foundation offers free services through their international helpline, to help patients who have been diagnosed with blood cancer.
Multiple Myeloma Research Foundation: 203.229.0464, www.themmrf.org
The MMRF relentlessly pursues innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure. This website provides relevant information pertaining to multiple myeloma as well as current research funded by this foundation.
National Bone Marrow Transplant Link: 1.800.LINK.BMT (800.546.5268), www.nbmtlink.org
This site will help you better understand and deal with the emotional and practical aspects of bone marrow/stem cell transplants and post-transplant concerns. This website will provide in-depth information on a wide range of related subjects, practical support for everyone affected by the transplant process, and links to useful online resources.
National Bone Marrow Donor Program – Be The Match Foundation: https://bethematch.org/
The National Marrow Donor Program® (NMDP) and our Be The Match Foundation are nonprofit organizations dedicated to creating an opportunity for all patients to receive the bone marrow or umbilical cord blood transplant they need, when they need it. Here you can find patient
Aplastic Anemia & MDS International Foundation, Inc.: 301.279.7202, http://www.aamds.org/
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world’s leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.
MPD Foundation: 312.683.7249, http://www.mpnresearchfoundation.org/
The MPD Foundation’s primary mission is to stimulate original research in pursuit of new treatments and eventually a cure for polycythemia vera, primary myelofibrosis and essential thrombocythemia. In addition, the MPD Foundation promotes collaboration in the scientific community to accelerate research, and serves as a powerful patient advocacy group for patients and their families.